Perinatal and Pediatric Bereavement in Nursing and Other Health Professions / Edition 1

by Beth Perry Black PhD, RN, Patricia Moyle Wright PhD, MBA, MSN, CRNP, ACNS-BC, CHPN, CNE, FPCN, Rana Limbo PhD, RN, CPLC, FAAN

Overview

[This] is a story of love, hope, and healing. There are 18 chaptersÖcovering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they can go on living. ÖThis book is a collection of clinical wisdom, theoretical knowledge, and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement."

óBetty Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN

From the Foreword

This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and its focus on the nurses and other health care providers who provide care to those involved.

Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book enhances the expertise of clinicians caring for bereaved women and their families. It includes case studies, interview excerpts, graphics, and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students
preparing for the Pediatric Loss Certification (NBCHPN) exam.

KEY FEATURES:

• Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss
• Disseminates the newest theoretical frameworks that can be used to create interventions and develop research.
• Includes case studies demonstrating how theory is applicable to research and practice
• Facilitates critical thinking with different and sometimes competing perspectives
• Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation

Product Details

ISBN-13:	9780826129260
Publisher:	Springer Publishing Company
Publication date:	09/10/2015
Edition description:	New Edition
Pages:	404
Product dimensions:	7.00(w) x 9.90(h) x 0.90(d)

About the Author

Beth Perry Black, PhD, RN, is an associate professor of nursing at the University of
North Carolina at Chapel Hill.

Patricia Moyle Wright, PhD, MBA, MSN, CRNP, ACNS-BC, CHPN, CNE, FPCN is a Professor of Nursing at The University of Scranton in Scranton, Pennsylvania, where she teaches in the undergraduate and graduate nursing programs. Dr. Wright brings her more than 25 years of experience in the field of hospice and palliative care to her teaching and truly loves to inspire students to provide the best possible care to those facing their last moments. She also continues to provide direct care to terminally ill patients through her work as a per diem hospice Nurse Practitioner. Outside of the classroom and clinical settings, Dr. Wright shares her love of end-of-life nursing care with others through her writing. She is the author of numerous articles and book chapters on issues related to end-of-life care. She is co-editor of the award-winning text Perinatal and Pediatric Bereavement in Nursing and other Health Professions (Springer Publishing), which was chosen as the 2016 AJN Book of the Year in the category of Palliative Care and Hospice. She is also the author of a ready reference text for nurses entitled Fast Facts for the Hospice Nurse: A Concise Guide to End-of-Life Care, as well as Certified Hospice and Palliative Nurse (CHPN) Exam Review: A Study Guide with Questions, which was a 2020 AJN Book of the Year award-winner in the category of Palliative Care and Hospice.

Rana Limbo, PhD, RN, CPLC, FAAN, is the associate director and senior faculty consultant of ResolveThrough Sharing (RTS), Gundersen Health System, La Crosse, Wisconsin.

Table of Contents

Foreword Betty R. Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN

Preface

SECTION I: PERINATAL BEREAVEMENT

Kristen M. Swanson

1: My Absent Child: Cultural and Theoretical Considerations of Bereavement When a Child Dies

Patricia Moyle Wright, Rana Limbo, and Beth Perry Black

Addressing Culture: A First Step in Bereavement Care

Continuing Bonds: Re-Examining How Attachments Are Maintained After Death

Posttraumatic Growth in Response to Loss

Concepts Related to Bereavement Theories

Conclusion

2: Applying Theoretical Frameworks to Research in Perinatal Bereavement

Sarah Kye Price and Dalia El-Khoury

Attachment Theory

Psychodynamic Theory

Interpersonal Theory

Cognitive Stress Theory

Feminist Theory

Emerging Perspectives: Trauma-Informed and Strengths-Based Approaches to Research

Conclusion

Case Study

Focus Questions

3: Caregiving as a Theoretical Framework in Perinatal Palliative Care

Rana Limbo, Anthony Lathrop, and Jane Heustis

Brief Historical Overview

Identifying Families in Need of Services

Layered, Progressive News Versus Sudden, Unexpected Realization

PPC Research

The Importance of Caregiving

The Internal Working Model of Caregiving

Caregiving in Bereaved Parents

Clinical Guidelines: Caregiving in Perinatal Palliative Care

Birth and Advance Care Planning

Beginning the Journey With the Family

The Role of the PPC Team

Support During the Pregnancy

Documentation

Conclusion

Case Study

Focus Questions

Resources

4: When an Expected Baby Dies: Maternal–Fetal Attachment in Context of Loss

Beth Perry Black

Theoretical Roots of Attachment and Bonding

Describing and Defining Women’s Relationship to the Developing Fetus

Narratives From Three Expectant Families With a Severe Fetal Diagnosis

Conclusion

Case Study

Focus Questions

5: The Pushing On Theory of Maternal Perinatal Bereavement

Patricia Moyle Wright

Pushing On

The Process of Maternal Perinatal Bereavement

Comparison With Other Models

Clinical Implications of the POT

Discussion

Conclusion

Case Study

Focus Questions

6: When the Unthinkable Happens: A Mindfulness Approach to Perinatal and Pediatric Death

Joanne Cacciatore

Mindfulness Approaches

Meditation

Concerns About the Mindfulness Approach to Traumatic Grief

Conclusion

Case Study

Focus Questions

7: Complicated Grief and Perinatal Loss

Patricia Moyle Wright

Defining CG

Grief and the DSM-5

CG and Perinatal Loss

Treating CG

Conclusion

Case Study

Focus Questions

8: Lesbians, Parenthood, and Reproductive Loss

Danuta M. Wojnar

LGBTQ Families in the United States

Human Desire to Become a Parent

Pregnancy Launching by Lesbian Couples

Miscarriage Experiences of Lesbian Couples

Conclusion

Case Study

Focus Questions

9: Early Pregnancy Loss During Adolescence

Sara Rich Wheeler and Marlene G. S. Sefton

Adolescent Growth and Development

Integrated Theory of Bereavement

Conclusion

Case Study

Focus Questions

Appendix 9.1: Bereavement Resources

Appendix 9.2: Tips for Talking With Adolescents Who Experienced a Pregnancy Loss

10: Understanding the Experience of Pregnancy Subsequent to a Perinatal Loss

Denise Côté-Arsenault and Joann O’Leary

Theoretical Perspectives of Pregnancy

Characteristics of Pregnancy After Loss

Interventions for Supporting Parents

Conclusion

Case Study

Focus Questions

SECTION II: PEDIATRIC BEREAVEMENT

Mary Muscari

11: Conceptual Approaches to Understanding Parental Grief After the Death of a Child

Margaret Shandor Miles

Definitions of Grief

Historical Literature About Parental Grief

Conceptualization Models of Grief

Parental Grief Models

Discussion

Toward Conceptualizing the Grief of Parents

Conclusion

Case Study

Focus Questions

12: Theoretical Perspectives on Pediatric Palliative Care

Rose Steele and Kimberley Widger

Evolution of Pediatric Palliative Care

Standards and Principles of Practice

Models of Pediatric Palliative Care

Pediatric Palliative Care Specialization

Conclusion

Case Study

Focus Questions

13: Hope, Hopefulness, and Pediatric Palliative Care

Douglas L. Hill and Chris Feudtner

Theories of Hope and Hopeful Patterns of Thinking

Hope in Health and Health Care

Pediatric Palliative Care

Future Directions

Conclusion

Case Study

Focus Questions

14: Grieving the Traumatic Death of a Child

Wendy G. Lichtenthal, Geoffrey W. Corner, Corinne Sweeney, and Kailey E. Roberts

Psychological Responses to the Traumatic Loss of a Child

Theoretical Models of Adjustment

Cause of Death: Does It Matter?

Physical Health and Mortality

Risk Factors

Supporting Traumatically Bereaved Parents

Conclusion

Case Study

Focus Questions

15: Remembering the “Forgotten Bereaved”: Understanding and Caring for Siblings of Completed Suicide Victims

Rebecca Kabatchnick and Beth Perry Black

Completed Suicide and Its Aftermath: Background

Reviewing the Literature on Siblings of Completed Suicide Victims

Interventions

Toward No Longer Shedding Tears Alone

Conclusion

Acknowledgment

Case Study

Focus Questions

16: Bereavement in Young Children With Siblings in Pediatric Palliative Care

Betty Davies, Camara van Breemen, Susan Poitras, and Eric Stephanson

The Long-Term Nature of PPC

Anticipatory Grief

The Model: Shadows in the Sun

Community Bereavement Resources

Conclusion

Case Study

Focus Questions

17: Supporting Grieving Children

Andy McNiel and Donna L. Schuurman

Definition of Terms

How Children Understand and Process Death

Understanding How Death Impacts Children’s Lives

What Grieving Children Need

Talking to Children About Death

Talking to Children About the Impending Death of Someone Close to Them

Sharing the News of Death With Children

Children’s Involvement in Funerals and Rituals

Cultural Issues Impacting Grieving Children, Teens, and Families

Conclusion

Case Study

Focus Questions

18: Moments Matter: Exploring the Evidence of Caring for Grieving Families and Self

Rana Limbo and Kathie Kobler

Background

Relationship-Based Care

Professionals Caring for Bereaved Parents

Caregiver Suffering

Conclusion

Case Study

Focus Questions

Resources

Index

Editorial Reviews

Reviewer: Erin R Currie, PhD, RN (University of Alabama at Birmingham)
Description: This is a comprehensive, theory-based resource for healthcare professionals who care for bereaved parents and family members who have lost a child, and for those who conduct research with perinatal and bereavement populations. It provides an overview of major theoretical developments related to perinatal and pediatric bereavement, application of theory to practice and research, and resources for bereavement professionals.
Purpose: The purpose is to provide evidence-based resources to healthcare professionals who care for families experiencing perinatal or pediatric death. As we move forward with bringing perinatal and pediatric bereavement out of the dark, this book addresses worthy objectives and has valuable insights for healthcare professionals interested in improving the care of bereaved persons.
Audience: The audience is professionals who care for bereaved families, including nurses, physicians, child life specialists, palliative and hospice care specialists, social workers, psychologists, and chaplains. The book also may be helpful for novice to expert scientists investigating perinatal and pediatric bereavement. The contributors are leading researchers in perinatal and pediatric bereavement.
Features: The book is divided into two sections, one on perinatal bereavement and one on pediatric bereavement. The perinatal bereavement section covers topics such as theoretical considerations for perinatal death, research methods, strategies to cope with perinatal death, complicated grief, special populations such as same-sex couples and adolescents, and subsequent pregnancy. The pediatric bereavement section discusses theoretical perspectives in parent bereavement, pediatric palliative care, supporting siblings, and disenfranchised grief. Even for experts in bereavement care, the loss of a child can be difficult to read about, but the literary excerpts throughout the chapters enhance readability. A major strength is the integration of theoretical underpinnings to support recommendations for practice and future research. Many chapters are dedicated to sibling grief, but there is a lack of focus on other family members who suffer disenfranchised grief, such as grandparents and foster parents.
Assessment: This is a useful resource for clinicians or others who provide direct care to bereaved families and those conducting research germane to perinatal and pediatric palliative care. The focus on evidence-based resources and theory-driven practice is helpful to clinicians and researchers wanting to improve the care of bereaved families who have lost a child.

Doody's Review Service