Working with Self-Management Courses: The thoughts of participants, planners and policy makers

by F. Roy Jones

Overview

The management of chronic disease and the contribution patients make to their own care is attracting widespread attention, nationally and internationally. A range of self-management courses have been developed by Kate Lorig and her team at Stanford University's Medical School since the early 1980s, and these have now been implemented throughout the UK. Designed for people with long-term health conditions, they are delivered by hundreds of agencies worldwide, and differentiate the concept of disease management (to be done by a health care professional) from the individual's management of life with a long-term condition (self-management).

This book explores how this work became important to the NHS and airs the arguments about the importance of lay leadership. It brings together those who have been instrumental in developing these courses, and assesses the value they hold for the different groups involved directly in them (participants, course trainers, staff), and those it will affect indirectly (GPs, nurses, policy makers, commissioners). The reader will find personal experience and accounts of the excitement in designing new work. Reflection on what happens to people attending courses is set alongside consideration of radical questions about the need for resilient communities. Next, the research reports are followed by considerations for policy makers and local agencies, voluntary and statutory. Finally, questions about the future direction and links to local communities are raised.

Product Details

ISBN-13:	9780199539314
Publisher:	Oxford University Press
Publication date:	04/12/2010
Pages:	200
Product dimensions:	6.10(w) x 9.10(h) x 0.60(d)

About the Author

Roy Jones led the team that introduced Stanford's Arthritis Self Management Programme to the UK, as Director of Services at Arthritis Care. Between 1993 and 2000 the programme grew extensively and was piloted in the NHS after the adoption of the Expert Patients report in 2001. Roy served on the DoH Task Force and the DoH Implementation Group guiding those developments. Previously, as Director of the Council for Voluntary Service, Northampton and County, community development work formed his commitment to local level service delivery. He worked on the establishment of the Councils of Disabled People and supporting independent welfare rights services. His concern for disabled people continues as Vice Chair of the Disability Alliance. In his consultancy role he has worked for the Department of Health and a number of health management and pharmaceutical companies. His continuing academic links are primarily with Coventry University and The School of Pharmacy, London, UK.

Table of Contents

Contributors xxi

1 UK origins and arguments F. Roy Jones 1

2 The ideas and health context from which self-management energed Jennifer Newbould 9

3 Participants views 17

Scottish Lowlands Carol McNaughton 17

Tower Hamlets Christine E. A. Cupid 18

The Christie, Manchester Course Tutor (Anonymous) 21

4 Advanced journeys into self-management 23

A personal journey Barbara Hogg 23

The HOPE course Andy Turner 26

The Theory, philosophy, and process of developing the Staying Positive Programme for adolescents with long term medical conditions Kathy Hawley 33

5 The principles of lay leadership Jean Thompson MBE 41

6 Delivering courses now 47

Looking at the Expert Patients Programme Jim Phillips 47

The programme in Scotland Angela Donaldson 51

Why we chose to get engaged in self-management in Tower Hamlets Elizabeth Bayliss 55

Still questions after 15 years of experience Phil Baker 59

The online opportunity Ian McNeil 64

Maintaining standards Jane Cooper 67

7 The value of self-management: Retrieving a sense of self: the loss and reconstruction of a life Patrick Hill Mike Osborn 73

8 Self-management and government policy David Colin-ThomèOBE 83

9 The business case for lay-led self-management Keith Hawley 91

10 Implementing pilot EPP within the wider strategy to support self care: An interview with Ayesha Dost 99

11 Self-management and patient and public involvement: An Interview with Bob Sang 107

12 The Expert Patients Programme - Community Interest Company: The future Simon Kinghton 115

13 Co-Creating Health: Transforming health care systems: Natalie Grazin in conversation with Roy Jones 123

14 Three bodies of the UK research 133

Coventry University Julie Barlow 133

The National Primary Care Research and Development Centre, University of Manchester Anne Kennedy Anne Rogers 140

Coventry University Applied Research Centre Health and Lifestyle Interventions: Learning from Co-Creating Health Louise M. Wallace 146

15 'Hard talk': What do we really know about the benefits and value of self-management course provision? David G. Taylor 157

16 Which way is forward? F. Roy Jones 165

Index 173

Editorial Reviews

Reviewer: Patti P Urso, PhD (Walden University)
Description: Using the comments of persons who have been involved in developing and participating in disease self-management courses, this book assesses the value of the courses to the communities for which they were designed as well as their relevance to potential policies and research.
Purpose: The purpose is to present the concept of self-management from a historical perspective, through an experiential one, and ultimately its future implications, using the perspective of multiple key players such as participants and providers. Although a book that explores this concept is needed, the objectives of this book are unclear.
Audience: This book is useful for those who are involved in teaching or developing self-management courses. It is also useful for proponents of the advancement of policies by understanding how these courses were designed and delivered. This book would be recommended for those interested in affecting policy and research directions. However, it would not be useful to participants in self-management courses due to its philosophical content.
Features: It covers a wide variety of experiences expressed by those who are involved in developing courses for self-management, starting with the historical perspective of self-reliance as far back as the 1800s. Many of the chapters center around the experience with courses, the support of agencies such as the National Institutes of Health, and a conclusion of the value of the self- management courses for primary prevention and the effect on participants. A lack of connection between chapters makes it a bit difficult to understand the themes of this book.
Assessment: This is a very unique book that focuses on highlighting the value of lay leadership in issues such as policies affected by the design of self-management courses in the U.K.

Doody's Review Service

Reviewer:Patti P Urso, PhD(Walden University)
Description:Using the comments of persons who have been involved in developing and participating in disease self-management courses, this book assesses the value of the courses to the communities for which they were designed as well as their relevance to potential policies and research.
Purpose:The purpose is to present the concept of self-management from a historical perspective, through an experiential one, and ultimately its future implications, using the perspective of multiple key players such as participants and providers. Although a book that explores this concept is needed, the objectives of this book are unclear.
Audience:This book is useful for those who are involved in teaching or developing self-management courses. It is also useful for proponents of the advancement of policies by understanding how these courses were designed and delivered. This book would be recommended for those interested in affecting policy and research directions. However, it would not be useful to participants in self-management courses due to its philosophical content.
Features:It covers a wide variety of experiences expressed by those who are involved in developing courses for self-management, starting with the historical perspective of self-reliance as far back as the 1800s. Many of the chapters center around the experience with courses, the support of agencies such as the National Institutes of Health, and a conclusion of the value of the self- management courses for primary prevention and the effect on participants. A lack of connection between chapters makes it a bit difficult to understand the themes of this book.
Assessment:This is a very unique book that focuses on highlighting the value of lay leadership in issues such as policies affected by the design of self-management courses in the U.K.