What You Really Want to Know About Life with Dementia: Real stories and expert advice for family, friends and people with dementia

What You Really Want to Know About Life with Dementia: Real stories and expert advice for family, friends and people with dementia

What You Really Want to Know About Life with Dementia: Real stories and expert advice for family, friends and people with dementia

What You Really Want to Know About Life with Dementia: Real stories and expert advice for family, friends and people with dementia

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Overview

Selected for Reading Well for Dementia 2024: endorsed by health experts, charities and people affected by dementia.

A family-led vision of what carers of people with dementia need and want to know. Supporting families and carers in their day-to-day life with dementia, this unique resource combines real stories from families with expert responses and advice for specific issues and concerns.

This resource is based on the real stories and real questions brought to the Admiral Nurse Dementia Helpline, peer support groups and clinical networks. Including questions around diagnosis, peer support, balancing risks, care transitions and end of life planning, the chapters are devised to support you, and give you the tools to live better, when dementia enters your life.


Product Details

ISBN-13: 9781787756960
Publisher: Jessica Kingsley Publishers
Publication date: 12/21/2022
Sold by: Barnes & Noble
Format: eBook
Pages: 224
File size: 927 KB

About the Author

Dr Karen Harrison Dening is Head of Research&Publications at Dementia UK, home of Admiral Nursing. She has years of expertise in palliative and end-of-life care, advance care planning and case management in dementia. Her previous books with Jessica Kingsley Publishers are Evidence-Based Practice in Dementia for Nurses and Nursing Students, and Dementia, Culture and Ethnicity: Issues for All
Dr Hilda Hayo became Chief Admiral Nurse&CEO for Dementia UK in 2013. As a dual registered nurse, she has held senior positions in clinical services, hospital management and higher education.
Christine Reddall has worked in many different settings. As a community Macmillan Nurse, realising that people with dementia and those with learning disabilities rarely accessed good palliative and end-of-life care, she concentrated her efforts in enabling this. Christine has used her experience gained from both professional and personal perspective to help promote awareness of young dementias.

Table of Contents

Meet the Editors 7

Contributors to This Book 9

Foreword Keith Oliver 11

Preface 13

Introduction 15

1 'Discovering my mother through Alzheimer's': Life Story 17

2 'I kept telling myself that he was still grieving for Mum': Diagnosing Dementia in Later Life 29

3 'Getting a diagnosis is not easy': Diagnosing Dementia in Younger Adults 41

4 'Maintaining independence and autonomy': Balancing the Risks 55

5 'Planning ahead is so overwhelming': Advance Care Planning 65

6 'Once he got a diagnosis, the girls had to believe': Distance and Denial of Dementia 77

7 'I feel as though lam going mad': Overwhelming Grief 89

8 'How does physical ill-health affect people with dementia?': Understanding Delirium 99

9 'I thought dementia was just about memory loss': Hallucinations 109

10 'He's run away with another woman': False Beliefs and Delusions 121

11 'He'd sit in that blessed chair all day, he would': Apathy in Dementia 131

12 'Where is your father?': Bereavement and Dementia 145

13 'Time to go home now': A Story of Sundowning 157

14 'Why is it so complicated?': NHS Continuing Healthcare Funding 167

15 'I just felt as though I had failed her when she needed me most': Transition into a Care Home 181

16 'Do people living with dementia feel pain?': Palliative Care and Dementia 195

Appendix: Consultation Is Key 207

Index 217

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