She Danced with Lightning: My Daughter's Struggle with Epilepsy and Her Boundless Will to Live

by Marc Palmieri

Overview

Part family memoir, part medical mystery involving severe epilepsy, She Danced with Lightning follows one girl’s battle to persevere as a competitive dancer, culminating in a terrifying decline, a courageous performance, and an eleventh hour, life-saving brain surgery.

Eleven-year-old Anna has lived all her life with severe epilepsy. Despite the ravage of thousands of violent seizures and heavy medications, she has thrived at school, athletics, and her greatest passion—dance. As she approaches her twelfth birthday, Anna’s condition takes a dire turn. Her health declines quickly and a new diagnosis is revealed, leaving the family only one excruciating choice. A parent’s memoir about the medical mysteries of epilepsy and the personal suffering of raising a child with a deadly health condition, She Danced with Lightning is told from the perspective of Anna’s dream-chasing father, who comes to learn from her a strength and courage he never imagined possible.

Product Details

ISBN-13:	9781637584200
Publisher:	Post Hill Press
Publication date:	08/09/2022
Pages:	272
Sales rank:	1,083,160
Product dimensions:	5.50(w) x 8.25(h) x 0.90(d)

About the Author

Marc Palmieri is a playwright, actor, screenwriter, baseball coach, and college professor. His plays include Waiting For the Host, The Groundling, Carl the Second, and the New York Times’s “Critic’s Pick” Levittown (all published by Dramatists Play Service, Inc.). His screenplays include Miramax’s Telling You (1999). He has published short fiction in Fiction, and short memoir in Global City Review and (Re) An Ideas Journal. Marc has appeared in many national television commercials, soap operas, and stage productions. He played baseball for Wake Forest University and was drafted by the Toronto Blue Jays, and continues to coach at the high school level. Marc is an assistant professor at Mercy College’s School of Liberal Arts in Dobbs Ferry, New York. He has also taught for a decade at The City College of New York’s MFA program in creative writing. Marc lives in New York City.

Table of Contents

Prologue xi

Chapter 1 It was Spring 1

Chapter 2 Welcome and Unwelcome Things 20

Chapter 3 Campus 42

Chapter 4 Love and Labor 57

Chapter 5 Honeymoon Period 75

Chapter 6 Pot, Poison, and an Abnormal Normal 92

Chapter 7 Therapy 117

Chapter 8 Crunch Time 131

Chapter 9 Diagnosis 152

Chapter 10 "Her only chance" 166

Chapter 11 "Will I die?" 190

Chapter 12 Showdown 210

Chapter 13 Waiting 229

Chapter 14 Goodbye 245

About the Author 253

Editorial Reviews

Marc Palmieri is a masterful storyteller. She Danced with Lightning is a beautifully rendered memoir of a young family in crisis and a marriage challenged on the path to healing. When Anna, Marc and Kristen’s infant, experiences seizures, the family embarks on a medical and emotional odyssey that will require a steadfast love and determination to cope with all that lies ahead. A resplendent story filled with hope. Brava.

Adriana Trigiani

She Danced with Lightning is a game-changer in the literature of medical mysteries in general, and epilepsy in particular. It is also a riveting and emotional thriller, and a can’t-put-it-down family drama.

When Anna is diagnosed with a severe form of epilepsy, her parents are hurled to the brink of the unthinkable. What follows is a story of heartbreak and hope, of a father’s unwavering love and a daughter’s unflinching courage, and of the medical crucible in which both lose themselves, find each other, and are each forever transformed.

Palmieri writes with a playwright’s sense of character and ear for dialogue, a screenwriter’s pulse for pace, a poet’s spiritual questing, an essayist’s perceptivity, and a memoirist’s divining rod for truth in all its guises. Told with humor and humanity, it will break your heart then put it back together—but somehow better than before.

Michael Laurence

2022-10-19
In this debut memoir, a father writes of his young daughter’s struggles with epilepsy.

Palmieri’s child, Anna, was just five months old when she experienced her first seizures. She was diagnosed with cortical dysplasia, a lesion or malformation of the frontal lobe of her brain, although tests regarding it were inconclusive. By the age of 2, it appeared that the affected area had shrunk, suggesting that Anna would grow out of having seizures. She tried many medications and routinely experienced episodes while sleeping, so her father spent the night nearby to prevent her from accidentally injuring herself. Anna developed a love of dance and played sports, but when she was 11, she started having symptoms during the day. She was rushed to the emergency room many times before an MRI confirmed the presence of a large lesion. After more than a decade of uncertainty, doctors advised surgery; Anna, afraid she would die during the procedure, insisted on performing in her dance recital. Palmieri writes well, using vivid sensory descriptors to immerse readers in various scenes; these include quieter moments, as the when the author watched TV in a pediatric intensive-care unit: “I kept us tuned to a kind of nature channel, which broadcast nonstop, shifting scenes of pleasing waterfalls, rolling plains, and windy grasslands to the sound of soothing instrumentals. It helped drown out the noise from the rest of the floor, which…carried on with all its activity as if it were high noon.” He also logically weaves his own personal story into the narrative. Palmieri once hoped for a baseball career but later tried to make a living with acting jobs and playwriting; he finally settled into teaching a college playwriting class but pursued directing and coaching on the side. His account of this career journey is secondary to his overarching story of his daughter’s trials, but in these sections, he honestly tells of trying to find himself while also being a caring father.

An earnest and personal perspective on one family’s medical struggles.

Kirkus Reviews