Responding to the Challenge: Current Issues and International Perspectives on Developmental Disabilities

by Hank A. Bersani

Overview

This book was developed in honor of Professor Gunnar Dybwad on the occasion of his 90th birthday and is a celebration of his lifetime of work with persons who have intellectual limitations, their families, and the professionals who have provided service and support to them. The 24 papers by his colleagues from around the world testify to the extent of his work overseas, and here in the U.S. and Canada, with his wife, Rosemary. The papers address areas such as legal issues, freeing persons with intellectual limitations from dead-end lives in institutions, engaging in self advocacy, and allaying the concerns of family and friends.

Product Details

ISBN-13:	9781571290755
Publisher:	Brookline Books, Incorporated
Publication date:	01/01/1999
Series:	Essays in Honor of Gunner Dybwad Series
Pages:	238
Product dimensions:	7.03(w) x 9.92(h) x 0.75(d)

Table of Contents

	Acknowledgments	ix
	Foreword	xi
	In Celebration of Gunnar Dybwad	xiii
	Editor's Preface	xvii
Section I	Conceptual Issues
1	The Medical Model: A Mostly Historical Discussion	3
2	The Role of Science in Advancing the Lives of People with Intellectual Disabilities	10
3	Architectural Trends and Values: From Humanizing Institutions to Inclusive Communities	23
4	The Metaphor of Mental Retardation: Rethinking Ability and Disability	35
Section II	Legal Issues
5	From Deficiency to Equality: How are Canada's New Constitutional Protections Working for Persons with Disabilities?	55
6	The Rights Revolution: From Isolation To Wyatt, Wyoming, And Beyond	69
7	On the Closing of Mansfield Training School	91
Section III	International Issues
8	People with Mental Retardation and Europe 2000: Comparing Cultural Trends and Different Experiences	97
9	Getting There: How Are We Doing Internationally?	104
10	Overcoming Challenges of Organizational Retardation: A Convoluted Approach to Addressing the Eye Care Needs of People with Mental Retardation in Israel	109
11	Meeting the Challenge of Intellectual Disability: An International Perspective	116
12	Discussion on the Future Design of Residential Care for Persons with Mental Retardation in Japan	123
13	The 'Lebenshilfe' in Germany	127
14	The Situation of Mentally Handicapped Persons and Their Families in Eastern Europe	133
Section IV	Self-Advocacy Issues
15	On Being Left Out	145
16	Gentle Words To Self-Advocate Friends	147
17	Who Teaches Us?	151
18	Tokenism--It Doesn't Look Good!!!	155
19	Who Speaks for Whom? Issues of Advocacy	158
20	Not to Yield	164
Section V	Family Issues
21	An Unanticipated Life: The Impact of Lifelong Caregiving	173
22	Gender, Disability, and Community Life: Toward a Feminist Analysis	189
23	In Her Own Home The Experiences of Catherine Schaefer	207
Section VI	Conclusion
24	Impatience, Mountains and the Moon	215
Appendix 1	Curriculum Vitae of Gunnar Dybwad	229
Appendix 2	Concluding Remarks from Gunnar Dybwad	231
Appendix 3	A Final Tribute to Rosemary F. Dybwad, Ph.D.	233
	About the Editor	239

Editorial Reviews

The two dozen papers consider conceptual, legal, international, self- advocacy, and family issues. They are concerned with such matters as the metaphor of mental retardation, the close of the Mansfield Training School, conditions in Israel, who speaks for whom, and the impact of lifelong caregiving. They are not indexed. Annotation c. Book News, Inc., Portland, OR (booknews.com)

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