Patient Advocacy for Health Care Quality: Strategies for Achieving Patient-Centered Care: Strategies for Achieving Patient-Centered Care / Edition 1

by Jo Anne L. Earp, Elizabeth A. French, Melissa B. Gilkey

Overview

As a contribution to the emerging healthcare quality movement, Patient Advocacy for Healthcare Quality: Strategies for Achieving Patient-Centered Care is distinct from any others of its kind in its focus on the consumer’s perspective and in its emphasis on how advocacy can influence change at multiple social levels. This introductory volume synthesizes patient advocacy from a multi-level approach and is an ideal text for graduate and professional students in schools of public health, nursing and social work.

Product Details

ISBN-13:	9780763749613
Publisher:	Jones & Bartlett Learning
Publication date:	08/06/2007
Edition description:	1E
Pages:	614
Product dimensions:	6.00(w) x 8.90(h) x 1.30(d)

About the Author

Jo Anne L. Earp, ScD, Professor, Department of Health Behavior and Health Education, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, is a medical sociologist whose research focuses on the role of social and attitudinal factors in explaining variation in health behaviors. Current research interests concern barriers preventing older minority women from getting mammograms and pap smears, community and physician strategies for overcoming these barriers, and factors responsible for high risk behaviors among persons with, or at risk for, STDs and AIDS. Earp has published over 110 articles in peer-reviewed journals and has extensive experience in curriculum development. She earned her ScD from the Johns Hopkins School of Public Health. In 2003, Earp became interested in patient advocacy as a topic of research, teaching and practice. She led two national conferences on the subject in 2003 and 2005, taught the first course at UNC-Chapel in 2006, and began speaking to national audiences, including AARP, on patient advocacy in 2007.

Elizabeth A. French, MA, is a writer and lecturer in the Department of Health Behavior and Health Education at the Gillings School of Global Public Health, UNC-Chapel Hill. With over 10 years in the profession, she teaches scientific writing, patient advocacy, and the history of public health for HBHE. She received her MA in English from the University of North Carolina at Chapel Hill and is currently pursuing an MPH in public health. In collaboration with Earp, French helped launch two national conferences on patient advocacy in 2003 and 2005.

Melissa Gilkey, MPH, is enrolled as a doctoral student at the Johns Hopkins School of Public Health. She is specializing in healthcare communication. Prior to that, she received her MPH from the University of North Carolina at Chapel Hill and was a research associate in the UNC Department of Health Behavior and Health Education. Her interests include service learning, health communications, and interdisciplinary training in the health sciences. Formerly a hospital health educator, she has experience in classroom teaching and curriculum development.

Table of Contents

Foreward     ix
Preface     xv
Acknowledgments     xxi
About the Editors     xxiii
Contributors     xxv
Introduction     1
What Is Patient Advocacy?   Melissa B. Gilkey   Jo Anne L. Earp   Elizabeth A. French     3
The U.S. Healthcare System and the Need for Patient Advocacy   Pam Silberman   Thomas C. Ricketts, III   Donna Cohen Ross     29
Understanding What Patients are Doing Now and What Providers Can Do to Support Them     59
Family-Centered Care: Why It Is Important, How to Provide It, and What Parents and Children Are Doing to Make It Happen   Beth Seyda   Terri Shelton   Nancy DiVenere     61
E-Patients: How They Can Help Us Heal Healthcare   Tom Ferguson     93
The Long Reach to Basic Healthcare Services: Partnering With Lay Health Advisors to Improve Health Equity   Alexis Moore   Jo Anne L. Earp     121
Improving Providers' Ability to Communicate and Create Relationships     151
The Clinician's Experience: Incorporating Advocacy Into the 20-Minute Medical Encounter   Beth A. Lown   Adina Kalet     153
Accessing the Patient's World: Patient-Physician Communication About PsychosocialIssues   Carol E. Golin   Carolyn Thorpe   M. Robin DiMatteo     185
Advocacy and Patient Literacy: What Healthcare Professionals Can Do To Help Patients Overcome Patient Literacy Barriers   Darren A. DeWalt   Mike P. Pignone     215
Improving the Quality of Care Through Research: Measuring Patient Activation   Judith H. Hibbard     241
Transforming Hospital and Medical School Culture to Support Patient- and Family-Centered Care     261
The Contributions of Patient Advocacy in Patient Safety   James Conway     263
Planetree, a Hospital Model for Patient-Centered Care   Susan B. Frampton   Laura Gilpin     289
Confronting the Hidden Curriculum in Medical Education: The Challenge Faced by Patients, Families, Educators, and Administrators in Changing Medical School and Hospital Culture   Kathy Zoppi   Patricia Sodomka   Julie Moretz     313
Advocacy for Improving End-of-Life Care: A 30-Year Healthcare Cultural Revolution   Gary S. Winzelberg   Laura C. Hanson     333
Making Consumers' Voice Heard in Policy and Law     359
Did Patient/Consumers Cause the Healthcare Crisis? Historical Talking Points for the 21st Century Patient Advocate   Nancy Tomes     361
Advocacy for Residents in Long Term Care: Lessons and Challenges   Elma L. Holder   Barbara Frank     387
Access to Healthcare: Using Data From a Nonprofit Advocacy Practice to Drive Policy Change   Nancy Davenport-Ennis     419
Research Advocacy in Traditional Research Settings: Questions of Influence and Legitimacy   Margo Michaels   Deborah Collyar     445
Advancing Education and Professional Roles in Advocacy     479
Educating for Health Advocacy in Settings of Higher Learning   Marsha Hurst   Martha E. Gaines   Rachel N. Grob   Laura Weil   Sarah Davis     481
Clinical Advocacy-Clinicians Advocating for Patients and Families Facing Complex, Life-Threatening Illness   Mark Renneker   Gwendolyn Stritter   Paul Jentes     507
Using the Law to Strengthen the Patient's Voice   Virginia L. Morrison   Nicola B. Truppin     533
Conclusion     567
Patient Advocacy: A Bridge to Improving Healthcare Quality   Jo Anne L. Earp   Katie Emmet   Elizabeth A. French     569
Index     603