Not So Different: What You Really Want to Ask About Having a Disability

by Shane Burcaw, Matt Carr (Illustrator)

Overview

Not So Different offers a humorous, relatable, and refreshingly honest glimpse into Shane Burcaw’s life. Shane tackles many of the mundane and quirky questions that he’s often asked about living with a disability, and shows readers that he’s just as approachable, friendly, and funny as anyone else.

Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles’ growth. As a result, his body hasn’t grown bigger and stronger as he’s gotten older—it’s gotten smaller and weaker instead. This hasn’t stopped him from doing the things he enjoys (like eating pizza and playing sports and video games) with the people he loves, but it does mean that he routinely relies on his friends and family for help with everything from brushing his teeth to rolling over in bed.

A Chicago Public Library Best Book of 2017

Product Details

ISBN-13:	9781250197887
Publisher:	Roaring Brook Press
Publication date:	11/07/2017
Sold by:	Macmillan
Format:	eBook
Pages:	40
File size:	26 MB
Note:	This product may take a few minutes to download.
Age Range:	6 - 9 Years

About the Author

Shane Burcaw is a twenty-three-year-old with spinal muscular atrophy. He lives in Bethlehem, PA with his family, and runs a blog and eponymous nonprofit organization dedicated to raising money for muscular dystrophy research.

Matt Carr is an award-winning visual storyteller with a background in photojournalism and a penchant for delivering honest, believable, and beautifully lit scenes. His photography has been published in The New York Times, Entertainment Weekly, and Rolling Stone among other publications, and he has been recognized by American Photo, Hasselblad Masters, PDN, IPA, and Communication Arts. After 10 years working in London and Prague, Matt now lives in Brooklyn with his wife and their spirited 4-year-old daughter.

Shane Burcaw is a twenty-something young adult with Spinal Muscular Atrophy and a wicked sense of humor. He lives in Minneapolis, Minnesota, where he runs a blog and nonprofit organization dedicated to providing medical equipment to people with muscular dystrophy diseases. He and his girlfriend are the duo behind Squirmy and Grubs, a YouTube channel that offers a behind the scenes look at their interabled relationship.
Matt Carr is an award-winning visual storyteller with a background in photojournalism and a penchant for delivering honest, believable, and beautifully lit scenes. His photography has been published in The New York Times, Entertainment Weekly, and Rolling Stone among other publications, and he has been recognized by American Photo, Hasselblad Masters, PDN, IPA, and Communication Arts. After 10 years working in London and Prague, Matt now lives in Brooklyn with his wife and their spirited 4-year-old daughter. His photographs illustrate Shane Burcaw's Not So Different.

Editorial Reviews

10/09/2017
Burcaw follows his YA memoir, Laughing at My Nightmare, with a picture book that offers an approachable and candid look at his life with spinal muscular atrophy (SMA). Throughout, he answers some common questions people have about his life and appearance, such as, “But how do you do things?” and “How does your chair work?” Burcaw’s responses usually include a touch of humor, but he’s always firm and clear; in response to the opening question, “What is wrong with you?” he says: “Absolutely nothing is wrong with me. I’m just a little different!” Carr’s photographs provide readers the opportunity to truly get a sense of Burcaw’s life while also creating a few opportunities for silliness—in one spread, Burcaw uses his wheelchair and rope to hoist his brother up to a basketball hoop (something the brothers attempted in real life, resulting in a broken motor). An author’s note includes a more in-depth medical explanation of SMA, as well as information about Burcaw’s nonprofit organization. Ages 6–9. Author’s agent: Tina Wexler, ICM. Photographer’s agent: Michael Ginsburg & Associates. (Nov.)

Publishers Weekly

This slim book packs a punch and can serve as a good introduction for students about people with disabilities.” —School Library Journal

“Burcaw’s tone is breezy, matter-of-fact, and humorous, and he’s got an accessible and mischievous persona . . . The combination of approachable photographs and informative text makes this highly valuable for solving kids’ essential conundrum of wanting to understand a disability without rudely quizzing people.” —Bulletin of the Center for Children's Books

“Questions are posed . . and answered with blunt clarity and humor. Readers get to know [Shane] on many levels as really not so different at all.” —Booklist

“Straightforward . . . Humorous . . . A candid, approachable resource for curious kids.” —Kirkus Reviews

From the Publisher

09/01/2017
Gr 1–3—Burcaw answers the most common questions he gets about having a disability. He was born with spinal muscular atrophy (SMA), which makes his muscles grow weaker throughout his life and his body smaller as he ages. A range of questions, from "What's wrong with you?" to "How do you play with your friends," are answered in a concise yet thorough way. Burcaw takes a humorous approach towards each topic, such as comparing himself to a T. rex when discussing why his head is bigger than the rest of his body. Additionally, he describes his wheelchair as working with a joystick "sort of like a video-game controller." This ultimately serves to emphasize that though Burcaw may look different, he is a person whom kids can empathize with. The discussion of his family's help and how it feels to be made fun of will allow readers to more fully understand what it is like to live with a disability. The pages are visually pleasing, with brightly colored photographs of Burcaw accompanying bold graphics and speech bubbles. An author's note at the end goes into greater detail about SMA and Burcaw's work as a disability rights activist. VERDICT This slim book packs a punch and can serve as a good introduction for students about people with disabilities.—Kathryn Justus, Renbrook School, West Hartford, CT

School Library Journal