It's Not Yet Dark

It's Not Yet Dark

by Simon Fitzmaurice


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“A fiercely eloquent testament to making the most out of every moment we’re given.”
People Magazine, Book of the Week

In 2008, Simon Fitzmaurice was diagnosed with Lou Gehrig’s disease. He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity he was not ready to die. Against all prevailing medical opinion, he chose life.  Despite the loss of almost all motor function, thanks to miraculous technology, he continued to work, raise his five children, and write this astonishing memoir. It’s Not Yet Dark is a journey into a life that, though brutally compromised, was lived more fully than most, revealing the potent power of love, of art, and of the human spirit. Written using an eye-gaze computer, this is an unforgettable book about relationships and family, about what connects and separates us as people, and, ultimately, about what it means to be alive.

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Product Details

ISBN-13: 9781328508270
Publisher: HMH Books
Publication date: 03/06/2018
Pages: 192
Sales rank: 732,802
Product dimensions: 4.90(w) x 7.40(h) x 0.60(d)

About the Author

Simon Fitzmaurice is an award-winning writer and film director. His debut memoir, It’s Not Yet Dark, was a #1 bestseller in Ireland. His films have screened all over the world and won prizes at home and abroad. His first feature film was just released in the UK and the United States.

Read an Excerpt

The brave
I am a stranger. A different breed. I move among you but am so different that to pretend I am the same only causes me pain. And yet I am the same, in as many ways as I am different. I am a stranger.

I observe your meaning on television, through song and writing. I was once like you. But I often feel distant from you.

My meaning has faces, names. Totems. The words we utter. Every breath of us is meaning.


Everyone notices but no one sees.

On the streets, in the crowds, no one sees.

I was once invisible. I moved among you, invisible in my disguise. Now I am difference made manifest. I cannot hide. I move with a force field that makes you avert your eyes. Only children see me. You gather them together when I draw near but they do not look away. You cross the street from me but your children do not look away. They are still looking for the definition of man.

I frighten you. I am a totem of fear. Sickness, madness, death. I am a touchstone to be avoided.

But not by all. The brave approach. Women. Children. Some rare men. And I am shaken awake.

Those I count as friends are the brave.

Holding my breath
I’m driving through the English countryside. A narrow road rising up to a tall oak tree. It could be Ireland. The call comes just before I reach the tree. It’s my producer and she is excited. She has just received a call from the Sundance Film Festival, saying they would like to screen our film. I feel something shift inside me. She talks quickly, then gets off. I pass the tree. She calls back. Says she got another call and that they are really excited to screen our film. We exchange words of jubilation I can’t remember and say goodbye. I’m driving down the country road and I am changed.


I have been to many other festivals. I don’t know why this one means so much to me. Maybe it’s because I grew up within my father’s world of cinema, where Robert Redford was a legend. The Natural was one of our favourite films. I don’t know. But I’ve often wondered if that was the moment motor neurone disease, or amyotrophic lateral sclerosis (ALS), began in me. That I had been holding my breath for years. And suddenly let go. And that something gave in that moment. Something gave.


My foot drops the following month.

I’m walking through Dublin. From Rialto to Stephen’s Green. I stayed in a friend’s house the night before. Slept on the floor. Now I hear a slapping sound. My foot on the pavement.

It’s a strange thing, like my foot has gone to sleep and is limp. It passes. I immediately relate it to the shoes I’m wearing, brown and red funky things with no support whatsoever. I wonder if I damaged my foot on the mountain climb last year. So I go into the outdoors shop off Grafton Street, upstairs to the footwear department, and start trying on a pair of running shoes, determined to give my foot support.

I ask the salesman for assistance. This is a mountaineering shop so I feel confident he will understand and I start to explain how I’d climbed a Himalayan mountain last year but I’d been wearing these awful shoes with no support and now my foot has started to flop in them and had he ever seen something like that before? He looks at me. My innocence meets his concern. No, I’ve never seen anything like that before, he says. The look in his eyes becomes a twinge in my stomach.

My first diagnosis is by a shoe salesman.

Baggot Street Bridge

I’m sitting on an uncomfortable stool in the dingy basement apartment of a friend from college when a girl walks into the room. She is tall, slender and quite easily the most beautiful girl I have ever seen. She is crossing the back of the room with a friend of mine. My first thought is simply, How the hell did he get her? She is a girl from Ardee, County Louth. She is out of my league. Her name is Ruth.


 I spent my whole life looking for Ruth.


Years after first seeing her, I’m walking down O’Connell Street with my parents, after coming out of the Savoy cinema, and I pass Ruth at a bus stop outside Clery’s department store. I stop my parents and run back to her. We talk but behind our words, in our eyes meeting, something is there. I ask for her number and she opens her bag. Her hair is short and she looks stunning in a simple navy winter coat. I’m cheeky. I see her pay slip in her bag and reach in, pretending to have a look. Ruth gives me her number, we say goodbye and I catch up with my parents. It’s Thursday.

I don’t call. It’s too important.

The following Monday, I’m walking up from Lansdowne station into work. Coming back from working in Ukraine, I had got a job no one else wanted. It was an accountancy practice with one accountant. That was the staff. Me and him. My job was to sit in a little back office and answer the phone. It never rang. Ever. I read all day. It was so quiet that the recruitment agency said no one had lasted more than a week in the place before me. I was getting through a book every three days. Paid to read. I had been there for months.

I’m standing at Baggot Street Bridge, waiting to cross in a crowd of commuters. It’s pre-coffee early and I’m half asleep. The girl in front of me is wearing headphones. Her coat is navy. I realise and slowly reach out to touch her shoulder. Ruth turns around. She is half asleep and it takes her a moment to recognise me. She goes red. I go red. She fumbles off her headphones and the crowd crosses the bridge without us.

It takes a few moments of conversation to figure out that she works just down the road from me and has done for months. That we both walk the same way to work, at the same time, and have done for months. But that we hadn’t met until four days after we bumped into each other for the first time in years. Wonderfully weird.

Embarrassed beyond reason, we hurry off.


We meet for lunch in Searson’s pub on Baggot Street. Two large bowls of pasta sit between us. But my stomach is constricted. So is Ruth’s. We cannot eat. It is embarrassing. It is love.


At the weekend we go to the cinema with some friends. I sit beside Ruth. The air is magnetically charged with my desire to touch her.


We kiss for the first time a week after, in a basement nightclub off Wicklow Street, in the shadow of a doorway.

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