John Howe
A one-of-a-kind book by a one-of-a-kind author. ‘One-of-a-kind’ book because it’s written from the ground real-time, not from twenty thousand feet. ‘One-of-a-kind’ author because it’s the voice of not only an observer but, more importantly, an active participant over forty years.”
six-term US Congressman; retired President and CEO Jim Greenwood
A great service. Well organized and tells a forty-year-long tale with a series of poignant chapters that bring the humanity of the patients, scientists, and others at the companies into the narrative.”
former two-term Governor of Massachusetts Deval Patrick
Patient-centered biotech companies have brought hope to families facing rare genetic diseases. Jim Geraghty has long been at the center of that revolution at Genzyme and elsewhere. His book alerts readers to policy issues of importance to every prospective parent or grandparent or anyone who cares about the health of humankind.”
Phil Sharp
Both unusually informative and interesting, Inside the Orphan Drug Revolution should get strong readership as a biography of the Orphan Drug Act and the progress it stimulated. It is an important contribution to the public discourse.”
twenty-term US Congressman; principal sponsor of t Henry Waxman
The Orphan Drug Act has been one of the most successful pieces of health-related legislation of the last fifty years. It truly has wrought a revolution for the lives of countless families. This book brings to life the forgotten story of the patient advocates who championed it, the resistance overcome to pass it, and the dramatic advances it has enabled for countless people afflicted by devastating genetic diseases.”