When her 5-year-old son was first diagnosed with Duchene Muscular Dystrophy, the first question Star Bobatoon asked was “Why Me?” Several years later she discovered the answer to her question: As an attorney, speaker, and trainer, she could--from a place of experience and compassion--support, empower and inspire parents who have children with special needs. I Hate Muscular Dystrophy: Loving a Child with a Life-Altering Disease is a product of Star’s answer. It is an honest, though sometimes raw, story of how Muscular Dystrophy came into her family’s life and how she learned to deal with the impact of the disease on a day-to-day basis. It’s a practical handbook for anyone who loves a child with special needs--teaching the importance of dancing in the rain as a way of coping with and managing their lives while manifesting joy and happiness.
Addresses the unspoken questions:
• Can I acknowledge hating the disease and still be a loving parent?
• How can I embrace my child when I am so afraid of what will happen to him?
• How do I deal with the stress, anxiety and guilt?
• Can I prevent the disease from consuming my life?
• Will I ever be happy again?