I Hate Muscular Dystrophy – Loving a Child with a Life-Altering Disease

I Hate Muscular Dystrophy – Loving a Child with a Life-Altering Disease

I Hate Muscular Dystrophy – Loving a Child with a Life-Altering Disease

I Hate Muscular Dystrophy – Loving a Child with a Life-Altering Disease

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Overview

When her 5-year-old son was first diagnosed with Duchene Muscular Dystrophy, the first question Star Bobatoon asked was “Why Me?” Several years later she discovered the answer to her question: As an attorney, speaker, and trainer, she could--from a place of experience and compassion--support, empower and inspire parents who have children with special needs. I Hate Muscular Dystrophy: Loving a Child with a Life-Altering Disease is a product of Star’s answer. It is an honest, though sometimes raw, story of how Muscular Dystrophy came into her family’s life and how she learned to deal with the impact of the disease on a day-to-day basis. It’s a practical handbook for anyone who loves a child with special needs--teaching the importance of dancing in the rain as a way of coping with and managing their lives while manifesting joy and happiness.

Addresses the unspoken questions:
• Can I acknowledge hating the disease and still be a loving parent?
• How can I embrace my child when I am so afraid of what will happen to him?
• How do I deal with the stress, anxiety and guilt?
• Can I prevent the disease from consuming my life?
• Will I ever be happy again?

Product Details

BN ID: 2940013194441
Publisher: Blackcurrant Press Company
Publication date: 08/02/2011
Sold by: Barnes & Noble
Format: eBook
File size: 187 KB

About the Author

Star Bobatoon is an accomplished attorney, dynamic trainer and award-winning speaker.

Her high-energy and engaging style makes a lasting impact on her audiences and clients. Star’s background in employment litigation and diversity counseling allows her to connect with diverse audiences, further enhancing her effectiveness as a speaker, trainer and executive coach.

Star has trained and shared the stage both nationally and internationally with world-renowned motivational icon Les Brown. As former Program Manager for Les Brown’s speaker training program, Star created programs, facilitated training and coached new speakers.

Star trains and speaks on many legal topics including diversity, discrimination and harassment and Family Medical Leave Act. Her passion, however, is empowering and inspiring adults and young people in the areas of leadership, personal development and communication. Star encourages her audiences and clients to embrace their inner light and become the STARs they were born to be.

Star is especially committed to organizations that support parents with special kids. She is a volunteer, speaker and workshop leader for informal support groups and national organizations including Parent Project Muscular Dystrophy (PPMD), Muscular Dystrophy Association (MDA) and the Make-A-Wish Foundation.

Her greatest accomplishment is being the proud parent of “two of the most beautiful children in the history of children.” Her youngest is her daughter Xanthia and her eldest is her son Hurricane. Hurricane has Duchenne Muscular Dystrophy and is the inspiration for this book.

For more information about Star Bobatoon visit www.StarBobatoon.com
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