Handbook of Perinatal and Neonatal Palliative Care: A Guide for Nurses, Physicians, and Other Health Professionals / Edition 1 available in Paperback, eBook
Handbook of Perinatal and Neonatal Palliative Care: A Guide for Nurses, Physicians, and Other Health Professionals / Edition 1
- ISBN-10:
- 082613839X
- ISBN-13:
- 9780826138392
- Pub. Date:
- 11/08/2019
- Publisher:
- Springer Publishing Company
- ISBN-10:
- 082613839X
- ISBN-13:
- 9780826138392
- Pub. Date:
- 11/08/2019
- Publisher:
- Springer Publishing Company
Handbook of Perinatal and Neonatal Palliative Care: A Guide for Nurses, Physicians, and Other Health Professionals / Edition 1
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Overview
Product Details
ISBN-13: | 9780826138392 |
---|---|
Publisher: | Springer Publishing Company |
Publication date: | 11/08/2019 |
Pages: | 438 |
Product dimensions: | 7.00(w) x 10.00(h) x 1.00(d) |
About the Author
Charlotte Wool, PhD, RN, FAAN, earned her bachelor of science in nursing from Bloomsburg University and began her career cross training in perinatal and neonatal units. She became a clinical nurse specialist after graduating from the University of Phoenix with a master’s in nursing. In that role she taught undergraduates, wrote and taught curricula for registered nurses in obstetrics and the NICU, developed and managed community perinatal education, and provided care at the bedside. Her diverse roles enabled her to work with parents across the pregnancy trajectory and informed her current program of research in perinatal palliative care.
Dr. Wool earned her PhD in nursing from the University of Texas at Tyler in 2011. She has designed and executed numerous studies that broaden the evidence base in perinatal palliative care, including the creation of two psychometrically sound instruments that have been translated into several languages and are in use internationally. As a leader in perinatal palliative care, Dr. Wool continues to focus on the needs of parents and the clinicians who care for them. She has increased our understanding of what parents who anticipate the loss of their infant want and need.
Dr. Wool actively partners with experts in the field to ensure an interdisciplinary voice in her publications. She has co-authored palliative care position statements for the National Association of Neonatal Nurses and the National Perinatal Association. Dr. Wool is a frequent invited speaker for international organizations and maintains her primary interest in excellent outcomes for families.
In recognition of her ongoing contributions to the field, she was inducted as a Fellow into the American Academy of Nursing in 2019.
Brian S. Carter, MD, FAAP, earned his bachelor of science in biology at David Lipscomb College and his medical doctorate from the University of Tennessee, College of Medicine—both with honors. He completed his residency in pediatrics at Fitzsimons Army Medical Center and his fellowship in neonatal–perinatal medicine at the University of Colorado—he is Board Certified in both. His scholarly interests have long included medical ethics and palliative care. Dr. Carter joined other early pediatric palliative care advocates and helped lead the way toward the integration of palliative care within the NICU and in the prenatal diagnostic clinics. His work has included decision-making in the NICU, incorporating parents into the care of their newborn, post-NICU follow-up, and the interdisciplinary team’s role in neonatal–perinatal palliative care. He continues to practice neonatology, see patients in follow-up, teach, write, and speak. He has published numerous peer-reviewed journal articles, book chapters, and co-edited or co-authored three books. He is a Fellow of the American Academy of Pediatrics and received honors from the AAP and the National Hospice and Palliative Care Organization.
Table of Contents
ContributorsForeword
Preface
Acknowledgments
About the Art and Artists
SECTION 1: UNDERSTANDING PALLIATIVE CARE
1. Advancing Palliative Care to Perinatal and Neonatal Settings
2. Neonatal and Perinatal Palliative Care Services and Programs
3. Creating Seamlessness in Palliative Care Services
SECTION 2: CARING FOR THE WHOLE FAMILY IN PALLIATIVE CARE
4. Comfort in Perinatal and Neonatal Palliative Care: An Innovative Plan of Care Focused on Relational Elements
5. Suspending Judgment: Being With and Knowing the Family
6. Helping Siblings Connect, Relate, and Say Goodbye
7. Barriers to Referring Patients for Perinatal Palliative Care
SECTION 3: PLANNING AND DECISION-MAKING
8. Communicating Devastating News
9. Grief and Memories Begin With Diagnosis
10. Anticipatory Guidance: Birth and Advance Care Planning
11. Difficulty in Predicting Survival: Genetics and Genetic Counseling
12. “Compatible With Love”: Qualitative Analysis of Decision-Making Rationale of Parents Who Continue a Pregnancy Affected by a Life-Limiting Fetal Condition
13. Perinatal Regoaling in the Face of Serious Illness: Hopeful Thinking, Good-Parent Beliefs, and Uncertainty
14. Building and Sustaining Relationships During Pregnancy
SECTION 4: PHYSICAL ASPECTS OF PALLIATIVE CARE: DIAGNOSIS, TREATMENT, AND OUTCOMES
15. Attending to Pain and Suffering in Palliative Care
16. Managing Pain and Discomfort in the Mother
17. Perinatal Palliative Care in the Context of Fetal or Neonatal Surgery
18. Palliative Care at the Time of Unexpected Premature Delivery
19. Compassionate Extubation and Withdrawal of Life-Sustaining Therapies
SECTION 5: SUPPORTING FAMILIES AND CARE PROVIDERS THROUGH THE NUANCES OF PALLIATIVE CARE
20. Lactation and Breastfeeding in the Context of Perinatal Palliative Care
21. Ten Ethical Principles for Neonatal Palliative Care
22. Spirituality: The Effects of Another’s Pain and Suffering on Care Providers
23. Assessing Perinatal Grief Intensity in the Palliative Care Setting
24. Strategies to Honor Professional Well-Being in Perinatal and Neonatal Care
Appendix: National Palliative Care Organizations and Resources
Index
What People are Saying About This
Drs. Limbo, Wool, and Carter [offer] well-articulated definitions, skills, and strategies based on sound evidence for providing this needed support in the perinatal and neonatal setting. . . . I applaud these editors and chapter authors in writing and bringing these materials together such that we are able to continue to change practice, so it is more holistic yet individualized to the unique needs of this baby and this family.
—Jacqueline M. McGrath, PhD, RN, FNAP, FAAN
Thelma and Joe Crow Endowed Professor
Vice Dean for Faculty Excellence, School of Nursing
University of Texas Health Science Center San Antonio
From the Foreword
The Handbook of Perinatal and Neonatal Palliative Care is an extraordinarily comprehensive and well-written volume that should be read by every clinician caring for pregnant women and newborns. The case-oriented format of each chapter makes the volume readable and also useful as a resource in complex situations. This book spans all aspects of the clinical and compassionate care of patients, families, and caregivers. Written by experts from all clinical disciplines, including medical and surgical physicians, mental health professionals, nurses, therapists, and chaplains, it also shows great respect for and gives voice to the parents of affected fetuses and neonates.
—Alan R. Fleischman, MD
Professor of Pediatrics
Professor of Epidemiology and Population Health
Senior Associate, Center for Bioethics
Albert Einstein College of Medicine
Children's Hospital at Montefiore
Bronx, New York