Finding the Light in Dementia:: A Guide for Families, Friends and Caregivers

by Dr. Jane M Mullins, Carole Fawcett (Editor)

Overview

‘Finding the Light in Dementia: a guide for families, friends and caregivers’ (2nd Edition) is the essential self help book that explains common changes that can occur in those living with dementia. By offering valuable approaches, tips and suggestions interspersed with individuals' stories, the reader can learn to care for and maintain a connection with their loved one (care partner). Whether you’re a spouse, partner, daughter, son, sibling, friend or even a parent caring for a loved one living with dementia, this book is for you. Finding the Light in Dementia will help give you more confidence to care by:

    Supporting you through your partner’s diagnosis of dementia
    Helping you understand what your partner is experiencing
    Teaching you ways to communicate and connect with each other
    Helping you make subtle changes to your home to help your partner feel safe and content
    Introducing practical and creative ways to stimulate memories to help with day to day living
    Showing you how to create lifestories together
    Suggesting ways to keep your partner interested and engaged in meaningful activities
    Providing tips for sleeping, eating and drinking
    Suggesting ways to help your partner with their appearance and dignity
    Showing you ways of overcoming the challenges of changing behaviour, reactions and responses
    Helping reduce the effects of hallucinations, delusions and misperceptions
    Suggesting ways for you to care for yourself
    Involving families and friends
    Giving advice when considering professional care at home and in residential care

Knowing how tired and stressed you may feel, ‘Finding the Light in Dementia’ is written in bite sized chunks that makes it easy to follow. By giving you space to write down any points you would like to make and providing question sheets for you to refer to when speaking with your doctor and/or legal professionals you can make this your personal guide. When following the approaches in this book, you should find that your partner will feel more understood and you will become calmer thereby helping you both find a sense of connection and continue to live well.

 

 

Product Details

ISBN-13:	9781999926823
Publisher:	DUETcare
Publication date:	04/04/2018
Sold by:	Barnes & Noble
Format:	eBook
Pages:	208
File size:	2 MB

About the Author

Jane M. Mullins is a dementia nurse consultant who has devoted over 25 years to the study and practice of dementia care. Through listening to and supporting people and their families during their diagnosis in memory clinics, caring for people who have dementia in hospital and in care homes, she has helped people throughout all of the stages of their condition. When managing a Nursing Home, she has supported their transition from home to residential care using lifestories as a guide to planning their life and care throughout their remaining years. This has also included supporting their partners, families and friends. Her particular passions are finding ways to communicate through music, nature and art as a way to helping people feel well and valued while living with dementia. Jane has uncovered certain common features that may help caregivers and the people they care for find better ways of coping, you can find these in her new book: Finding the Light in Dementia, a Guide for Families, Friends and Caregivers. Her extensive practice experience is backed up by expert knowledge gained from keeping up with research, attending conferences, seminars, investigator meetings, lecturing and studying for her PhD; A suitcase full of memories: a sensory ethnography of dementia. She explores sensory, creative and intuitive ways of communicating with those living with dementia. Her passion of spreading the word about how to connect with and help those affected by dementia also shines through in her columns in the Mature Times, Mumbles Times and Cardiff Times.
Carole Fawcett is a Clinical Hypnotherapist and qualified Counsellor as well as a book editor. The fact that Carole is a qualified counsellor has proved invaluable in understanding and helping writers communicate the ethos and nature of their work through their writing. Her editing approach and personable style helps writers feel less isolated and supported.

Table of Contents

Chapter One: A Diagnosis of Dementia, what now? How to face up to the situation and make positive plans for the future

Chapter Two: Communicating from the Heart. How to find ways to help you communicate well together

Chapter Three: Using Memories to Keep in Touch. Creative approaches to stimulate memory and help with day to day living

Chapter Four: Staying Connected through Life Stories. How to re-connect by creating your life stories that you can enjoy together

Chapter Five: Creating a Calm, Safe Home. How to help your care partner feel content and safe at home

Chapter Six: Sleep is the Best Medication. Gentle approaches to help you both feel rested

Chapter Seven: Tips for Eating and Drinking. How good nutrition and hydration can provide balance in your lives

Chapter Eight: I am Still Me! How to maintain your partner’s dignity and help with their appearance

Chapter Nine: Understanding Changes in Mood and Behaviour. How to listen and respond to the emotions behind mood and behaviour

Chapter Ten: Altered States: Hallucinations, Delusions, Misperceptions. Try new approaches to avoid distress

Chapter Eleven: Caring for the Caregiver. Quick and easy ways to nurture and replenish yourself

Chapter Twelve: Considering Care. What to look for in choosing caregivers, respite and care homes

Having a diagnosis of dementia can often lead to feelings of anxiety and uncertainty for the future. Chapter one in Finding the Light offers guidance and practical advice about what positive plans you need to make together.

People who have dementia may become disoriented to time and space. They need to be in a familiar environment surrounded by people who know them, in order to feel safe and secure. Involve their friends and family; children can be particularly intuitive and offer a blanket of hope and a great source of love. Language is often affected by dementia, so Finding the Light introduces ways we can communicate beyond speaking and help you make the most of non-verbal forms of communication and find ways of understanding each other.

Memory and awareness of time and place can be affected, this can include forgetting, repetitive behaviour, failing to recognise people, not understanding time and getting lost. Finding the Light helps you to understand what your partner is experiencing and offers suggestions to overcome these difficulties while helping you both find joy in shared remembering.

Judgement may be impaired by dementia: this can include not being able to recognise risks, such as knowing that a hot cup of tea may scald, or how to dress appropriately for the weather. Here are some ideas to help your partner feel safe, secure and content while maintaining their independence for as long as possible. Eating, drinking and sleeping can be affected by dementia. Finding the Light shows how good nutrition, hydration and sleep can help you both keep well and maintain some balance in your lives together.

Chapter Eight helps provide practical suggestions to help your partner keep their dignity and sense of self-worth while Chapters Nine and Ten explain what might be happening to your partner's moods and beliefs and show you how you can help.

When caring we tend to forget about our own needs and this can lead to emotional, physical and social problems for ourselves. I offer positive suggestions to self care while caring for your partner. Chapter Twelve offers advice about involving other caregivers to help both you and your partner and provides gentle suggestions when looking at a care home, either for respite or on a long-term basis.