Early: An Intimate History of Premature Birth and What It Teaches Us About Being Human

Early: An Intimate History of Premature Birth and What It Teaches Us About Being Human

Early: An Intimate History of Premature Birth and What It Teaches Us About Being Human

Early: An Intimate History of Premature Birth and What It Teaches Us About Being Human

Audio MP3 on CD(MP3 on CD - Unabridged)

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Overview

Inspired by the author’s harrowing experience giving birth to her premature daughter, a compelling and empathetic work that combines memoir with rigorous reporting to tell the story of neonatology—and to meditate on the questions raised by premature birth.

The heart of many hospitals is the Neonatal Intensive Care Unit (NICU). It is a place where humanity, ethics, and science collide in dramatic and deeply personal ways as parents, doctors, and nurses grapple with sometimes unanswerable questions: When does life begin? When and how should life end? And what does it mean to be human?

Nearly twenty years ago, Dr. John D. Lantos wrote The Lazarus Case, a seminal work on ethical dilemmas in neonatology. He described the NICU as “a strong, strange, powerful place.” The NICU is a place made of stories—the stories of mothers and babies who spend days, weeks, and even months waiting to go home, and the dedicated clinicians who care for these tiny, developing humans. The book explores the evolution of neonatology and its breakthroughs—how modern medicine can be successful at saving infants at five and a half months gestation who weigh less than a pound, when only a few decades ago, there were essentially no treatments for premature babies.

For the first time, Sarah DiGregorio tells the complete story of this science—and the many people it has touched. Weaving her own story, those of other parents, and NICU clinicians with deeply researched reporting, Early delves deep into the history and future of neonatology, one of the most boundary pushing medical disciplines: how it came to be, how it is evolving, and the political, cultural, and ethical issues that continue to arise in the face of dramatic scientific developments.

Eye-opening and vital, Early uses premature birth as a lens to view our own humanity, and the humanity of those around us.


Product Details

ISBN-13: 9781094105499
Publisher: HarperCollins Publishers
Publication date: 01/28/2020
Edition description: Unabridged
Product dimensions: 5.40(w) x 6.70(h) x 0.60(d)

About the Author

Sarah DiGregorio is a freelance journalist who writes for various publications, including the Wall Street Journal, Martha Stewart Living, Food & Wine, and Saveur. In 2010, she was nominated for a James Beard Award and an award from the International Association of Culinary Professionals (IACP). Her work has been included in the Best American Food Writing yearly anthologies three times. She is also the author of a cookbook, Adventures in Slow Cooking with a foreword by chef Grant Achatz, which was published in 2018 by William Morrow.

Ann Marie Gideon is an Atlanta-based actor and voice artist. She graduated with a BFA from the University of Memphis, trained at the Accademia dell'Arte in Arezzo, Italy, and has performed in theaters across the United States. Ann Marie has been narrating audiobooks continuously since 2013 and has developed a love and passion for crafting a story through narration. With over eighty-five titles under her belt, she specializes in young adult, self-help nonfiction, contemporary female fiction, and romance.

Table of Contents

Author's Note ix

Prologue: One Birth 1

Part I The Unexpected: Millions of Births

1 What Happened? 31

2 Treatments and Outcomes 39

3 Viability and the Zone of Parental Discretion 45

Part II The Body: Incubation

4 The History of Incubation: Coney Island, Chicken Eggs, and Changelings 51

5 The Modern Incubator, or How to Build a Giraffe 74

6 The Incubators of the Future: Babies in Bags 83

Part III The Breath: Treating Respiratory Distress

7 Dr. Mildred Stahlman and the Miniature Iron Lung 99

8 Dr. Maria Delivoria-Papadopoulos and the Rugged Machine 112

9 JFK's Lost Baby and the Advent of Surfactant 121

Part IV The Self: Protecting the Premature Brain

10 The Revolutionary Practice of Listening to Preemies 133

11 Follow-up Care: Preemie Development Beyond the NICU 153

Part V The Threshold: End-of-Life Issues at Birth

12 What Should We Do for 22-Week Babies? 177

13 Knowing When to Stop 203

14 Choice, Decisions, and the Messiness of Real Life 227

Part VI The Crisis: The Body Under Stress

15 Racism Causes Preterm Birth 243

16 What Prematurity Means in Mississippi 260

17 Group Prenatal Care and the Power of Community 271

Part VII The Invisibles: Breaking the Silence

18 The Hidden Trauma of Prematurity 289

19 Grown Preemies Speak for Themselves 297

Epilogue 306

Acknowledgments 309

Notes 313

Index 337

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