Cicely Saunders and Total Pain: Holism, Narrative and Silence at the End of Life
Introduced in 1964, Cicely Saunders’ term ‘total pain’ has come to epitomise the holistic ethos of hospice and palliative care. It communicates how a dying person’s pain can be a whole overwhelming experience, not only physical but also psychological, social and spiritual. ‘Total pain’ clearly summarises Saunders’ whole-person, multidisciplinary outlook but is it a phenomenon, an intervention framework, a care approach – or something else? This book disregards the idea that Saunders’ phrase has one coherent meaning and instead explores the multiple interpretations now current in contemporary professional discourse. Using close reading of Saunders’ extensive publications, as well as archival evidence and Saunders’ own personal library, it situates the current usage of ‘total pain’ in wider histories of clinical holism, questions its similarity to later ideas of narrative medicine, and explores how it might express the ambiguities of bearing witness to pain and vulnerability when someone is dying.
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Cicely Saunders and Total Pain: Holism, Narrative and Silence at the End of Life
Introduced in 1964, Cicely Saunders’ term ‘total pain’ has come to epitomise the holistic ethos of hospice and palliative care. It communicates how a dying person’s pain can be a whole overwhelming experience, not only physical but also psychological, social and spiritual. ‘Total pain’ clearly summarises Saunders’ whole-person, multidisciplinary outlook but is it a phenomenon, an intervention framework, a care approach – or something else? This book disregards the idea that Saunders’ phrase has one coherent meaning and instead explores the multiple interpretations now current in contemporary professional discourse. Using close reading of Saunders’ extensive publications, as well as archival evidence and Saunders’ own personal library, it situates the current usage of ‘total pain’ in wider histories of clinical holism, questions its similarity to later ideas of narrative medicine, and explores how it might express the ambiguities of bearing witness to pain and vulnerability when someone is dying.
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Cicely Saunders and Total Pain: Holism, Narrative and Silence at the End of Life

Cicely Saunders and Total Pain: Holism, Narrative and Silence at the End of Life

by Joe Wood
Cicely Saunders and Total Pain: Holism, Narrative and Silence at the End of Life

Cicely Saunders and Total Pain: Holism, Narrative and Silence at the End of Life

by Joe Wood

Hardcover

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Overview

Introduced in 1964, Cicely Saunders’ term ‘total pain’ has come to epitomise the holistic ethos of hospice and palliative care. It communicates how a dying person’s pain can be a whole overwhelming experience, not only physical but also psychological, social and spiritual. ‘Total pain’ clearly summarises Saunders’ whole-person, multidisciplinary outlook but is it a phenomenon, an intervention framework, a care approach – or something else? This book disregards the idea that Saunders’ phrase has one coherent meaning and instead explores the multiple interpretations now current in contemporary professional discourse. Using close reading of Saunders’ extensive publications, as well as archival evidence and Saunders’ own personal library, it situates the current usage of ‘total pain’ in wider histories of clinical holism, questions its similarity to later ideas of narrative medicine, and explores how it might express the ambiguities of bearing witness to pain and vulnerability when someone is dying.

Product Details

ISBN-13: 9781399531061
Publisher: Edinburgh University Press
Publication date: 11/30/2024
Series: Contemporary Cultural Studies in Illness, Health and Medicine
Pages: 256
Sales rank: 354,737
Product dimensions: 6.14(w) x 9.21(h) x 0.00(d)

About the Author

Joe Wood is currently an Affiliate Researcher at King’s College London. He has worked in the English department at King’s and as part of the Glasgow End of Life Studies Group at the University of Glasgow. His work on Cicely Saunders and narrative at the end of life has led to collaborative work with St Christopher’s Hospice and the Royal College of Nursing.

Table of Contents

Acknowledgements
Series Editor's Preface


Introduction: Pinning Down the Intangible

Part I. Holism

1. Saunders’ Use of ‘Total Pain’
2. Uses and Definitions of ‘Total Pain’ After Saunders: Many Holisms
3. Criticising ‘Total Pain’: Definite Concept or Ambiguous Term?

Part II. Narrative
4. ‘Total Pain’ and Narrative Medicine: A Sense of an Ending
5. Defending a Narrative ‘Total Pain’: Narrative vs. Narrating
6. Using Narratives to Express ‘Total Pain’

Part III. Fragments and Silence
7. Quotations and Fragments: The Limits of Narrative
8. Photographs: Looking for/at ‘Total Pain’
9. No Words: Presence and ‘Total Pain’

Conclusion: ‘Total Pain’ Now

Bibliography
Index

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