Can I tell you about Nystagmus?: A guide for friends, family and professionals

by Nadine Neckles, Vikas Upadhyay (Illustrator)

Overview

In this friendly guide, a girl called Amber explains all about her 'dancing eyes,' or nystagmus. Amber explains how children with nystagmus might need to read, learn or play differently, and what their families, school and friends can do to help. She invites readers to learn the causes and symptoms, to help others understand the condition and help increase the self-esteem and confidence of those who have it.

This accessible guide for children aged 7+ is an excellent starting point for parents, teachers and other professionals working with children with nystagmus. It includes a practical checklist of easy adaptations to make school or home environments easier and more enjoyable for children with nystagmus, as well as a helpful list of recommended resources for additional support.

Product Details

ISBN-13:	9781784509651
Publisher:	Kingsley, Jessica Publishers
Publication date:	02/21/2019
Sold by:	Barnes & Noble
Format:	eBook
Pages:	80
File size:	2 MB
Age Range:	7 - 18 Years

About the Author

Nadine Neckles is a special needs blogger who has written for leading disability charities including Carers UK, Caring in the Chaos and Firefly. Nadine is a full-time carer to her young daughter who has nystagmus and Chromosome 18q-, a rare genetic condition.

Table of Contents

1. Introduction for parents, carers and professionals; 2. Introduction to Nystagmus; 3. Introduction to Amber - Introducing Amber who has Nystagmus; 4. Diagnosis; 5. Wearing glasses; 6. School and Nystagmus; 7. Making friends and playing - Avoiding bullying; 8. Playing; 9. Sensory; 10. Things that affect my Nystagmus; 11. When I grow up - Adults living successfully with Nystagmus; 12. Treatment for Nystagmus; 13. Associated conditions; Useful checklist for adults; Glossary of terms; Helpful resources, books and websites

Editorial Reviews

'Can I tell you about nystagmus' is an extremely helpful source for both carers of, and people with nystagmus. The user-friendliness of the book aids to understand nystagmus, gives useful tips and shines a positive light on living with the condition.

Professor Irene Gottlob and Dr Rebecca McLean

Can I tell you about Nystagmus is a welcome addition to the series and highlights a much misunderstood condition. Seen from the family's perspective, the description of the way nystagmus affects the daily life of a young child will be informative and reassuring for other parents.

Sue Ricketts

The book is useful for all professionals in highlighting a number of ways to help a child with nystagmus. It is written in easy, upbeat language with fun illustrations, that all of us can enjoy.

J. Margaret (Maggie) Woodhouse OBE