Asperger Syndrome in Adolescence: Living with the Ups, the Downs and Things in Between

by Isabelle Henault (Contribution by), Jacqui Jackson (Contribution by), Mike Stanton (Contribution by), DeAnn Hyatt-Foley (Contribution by), Dennis Debbaudt (Contribution by)

Overview

Childhood and adult experiences of individuals with Asperger Syndrome (AS) are becoming increasingly well documented, yet the crucial formative teenage years have, so far, been neglected. Adolescence is a difficult time for any teenager, but when you have Asperger Syndrome this already emotionally complex time of life becomes all the more challenging. Reflecting the views of parents, professionals and those with AS themselves, this book tackles issues that are pertinent to all teenagers, such as sexuality, depression and friendship, as well as discussing topics like disclosure and therapeutic alternatives that are more specific to those with AS. This book aims to make the transition from child to adult as smooth as possible, and is an essential survival guide to adolescence.

Product Details

ISBN-13:	9781843107422
Publisher:	Jessica Kingsley Publishers
Publication date:	02/20/2003
Pages:	336
Product dimensions:	5.98(w) x 9.13(h) x 0.87(d)

About the Author

Isabelle Hénault has a masters degree in sexology and a doctorate of psychology from the Quebec University in Montreal. She has a private practice that provides assessment and therapy for individuals, couples and families, and acts as a consultant to a variety of organizations and schools. Her expertise lies in Asperger's Syndrome, with a special emphasis on sexuality, and she is the author of a sociosexual education programme for people with AS. She is involved with several international research projects on sexual education and psychotherapy for people on the autism spectrum.

Jacqui Jackson is a single parent and, in addition to raising seven lively children, has a first class degree from the Open University. She is a frequent speaker on autism issues.

Mike Stanton teaches in a school for children with severe learning difficulties in the UK. Some of his pupils are children with autism, and despite the difference in ability he recognizes the similarities between them and people with high functioning autism like his son. Since Matthew was diagnosed with Asperger's Syndrome the whole family has been active in the National Autistic Society. Thus Mike brings both professional understanding and personal experience to the subject. He is, as he likes to style himself on Internet forums, 'a parent and a teacher and learning all the time'.

Dennis Debbaudt is a licensed private investigator and the owner of Debbaudt Detective Agency. As an autism advocate, he has authored the booklet Avoiding Unfortunate Situations (1994), articles for the FBI Law Enforcement Bulletin, and newsletters of the Autism Society of America, Autism-Europe and TASH among other advocacy organizations, and presented information to law enforcement professionals and advocacy organizations in the U.S., Canada and United Kingdom. He's been involved in the development of Maryland's Police and Correctional Training Commissions autism curriculum, an award-winning training video and numerous grass roots training projects. His 18-year-old son, Kelly, has autism.

Clinical Psychologists and husband/wife team Steven Gutstein and Rachelle Sheely are founders of the internationally known Connections Center for Relationship Development. Steven Gutstein is the author of Autism/Aspergers's: Solving the Relationship Puzzle.

Tony Attwood, PhD, is a clinical psychologist from Brisbane, Australia, with over 30 years of experience with individuals with autism spectrum disorders. He is currently Adjunct Professor at Griffith University in Queensland.

Luke Jackson is 13 years old and has three sisters and three brothers. One of his brothers has AD/HD, one is autistic and Luke has Asperger Syndrome.

Luke Jackson, Jacqui Jackson and the rest of their family were featured in a documentary on BBC2 which you can read about on the BBC website. Luke also recorded a column for BBC Radio 4's Home Truths programme. You can hear it online.

Lise Pyles lives with her family in Aurora, Colorado and is the mother of a son with Asperger Syndrome who, homeschooled for several years, is now at university. Her family's journey has encompassed living on three continents and following many paths including therapy, diet, medication and several schooling options.

Table of Contents

Foreword, Luke Jackson, UK. Introduction. 1. Asperger Syndrome in the adolescent years, Richard Howlin, USA. 2. Cognitive behavior therapy, Tony Attwood, Australia. 3. The sexuality of adolescents with Asperger Syndrome, Isabelle Henault, University of Quebec, Canada. 4. Can my baby learn to dance?, Steve Gutstein, The Connections Center, USA. 5. The importance of occupational therapy for adolescents with Asperger Syndrome, Marc Willey and Liane Holliday Willey, USA. 6. Safety issues for Adolescents with Asperger Syndrome, Dennis Debbaudt, Debbaudt Detective Agency, USA. 7. When the thunder roars, Liane Holliday Willey, USA. 8. Settling into the diagnosis of Asperger Syndrome, Rebecca Moyes, Educational Consultant for State of Pennsylvania, USA. 9. Families and parenting - the domino effect, Jacqui Jackson, UK. 10. Starting from scratch: Being innovative in finding interventions for your adolescent with Asperger Syndrome, DeAnn Foley, President of ‘Reaching Aspergers/Autism through Information and Networking', USA. 11. Education and the adolescent with Asperger Syndrome, Lise Pyles, Australia. 12. Disclosure for people on the autism spectrum, Stephen Shore, USA. 13. How do I be me?, Mike Stanton, National Autistic Society, UK. Index.

Editorial Reviews

For people with Asperger Syndrome (AS) the teenage years can be particularly torrid, and consequently very challenging for carers and any staff working with sufferers or their families, yet little has been written on the subject. This substantial reader, containing contributions from many international experts, covers a broad range of issues.

Care & Health Magazine

this publication was certainly a welcome sight. Drawing from the experiences of parents, professionals and individuals with Asperger Syndrome this book covers the crucial areas of sexuality, friendships both appropriate and inappropriate, educational choice, disclosure, safety issues, therapies and feelings. Throughout the book each chapter and individual author combines theory and practice to provide clear and positive strategies/ideas/suggestions making that particular topic area seem a lot more achievable. A very valuable resource for all parents, carers and professionals facing the adolescent years of the person in their care.

Communication

Two areas that cause difficulties for young people with AS are friendship and sexuality. The book offers no hard and fast rules, but there is intelligent advice, plus website references to follow-up. This book would be a welcome addition to any department dealing with AS in adolescence.

Bulletin

First, it focuses on the issues that are paramount and unique to adolescence. Clinicians working with parents who have to deal with diagnosis during this period, and understanding why their child who managed previously, is now having so much trouble will benefit from a practical how-to appropriate to this age group. Second, this book brings together such diverse authorship that the reader cannot help but come away with a sense of the disorder from within, from loving family and from dedicated professionals working to problem solve side by side. Third, the chapters in the book cover areas that I have not seen spoken to with such thoughtfulness anywhere else, although real life demands their attention. This includes Asperger's and sexuality, friendship, safety, school options, siblings, disclosure, motor coordination and coping with the bittersweet news of diagnosis. These are questions I have been asked. Having a book available that addresses each of these issues by experts in the area from occupational therapists, to private inspector and special education teachers provides a framework and structure for more thoughtful therapeutic interventions.

The Canadian Child and Adolescent Psychiatry Review

contains a great deal of extremely useful information

ACT Bulletin

The variety of viewpoints makes the book of interest to numerous audiences, ranging from persons who know nothing about the condition to professionals. Since it has only been in the past few years that Asperger Syndrome has been generally recognized, teachers who did not receive their training very recently should find this book particularly informative. The number of students diagnosed with Asperger Syndrome is growing, and interest in the condition will undoubtedly increase. This book should be purchased for professional collections and by academic libraries that support programs related to autism spectrum disorders.

Education Book Reviews

There is a great need for practical strategies for this age group and this book offers many from a variety of sources. Every one of the chapters contains excellent insights into the effects of Asperger Syndrome and the experience of those it affects. The contributors also offer a range of practical strategies that professionals, parents and individuals with Asperger syndrome can try, in order to cope with the real agonies of the transition to adulthood.

Children Now

Two areas that cause difficulties for young people with AS are friendship and sexuality. The book offers no hard and fast rules, but there is intelligent advice, plus website references to follow-up. This book would be a welcome addition to any department dealing with AS in adolescence.

Bulletin