Table of Contents
Preface ix
Foreword xi
Acknowledgments xiii
Part 1 The Basics 1
Questions 1-6 answer basic questions about chronic illness:
What is chronic illness?
What causes chronic illness?
How is the treatment of chronic illness different from the treatment of acute illness?
Part 2 Stages of Grieving 11
Questions 7-18 deal with some of the difficult emotions that arise after a diagnosis of chronic illness:
Did I cause my disease?
If I'm never going to get better, why bother trying?
How can I manage depression?
Part 3 How Chronic Illness Affects Social Relationships 25
Questions 19-24 address the impact of chronic illness on relationships with loved ones, family, and friends:
Why do I feel so isolated?
How can I make other people understand what I am going through?
Should I tell people about my condition?
Part 4 Chronic Illness and the Law 37
Questions 25-30 explain the rights and protections that the law provides for chronically ill and disabled people:
What rights do I have under the Americans with Disabilities Act?
What is the Family Medical Leave Act, and how does it affect me?
How can I be sure that my wishes will be honored if I am unable to make medical decisions for myself?
Part 5 Medical Providers and Organizations 47
Questions 31-38 deal with common problems that patients have with doctors, medical staff, and insurance companies:
How can I get my doctors to talk to one another about my medical care?
Why do I have to see doctors so often?
Can I fire my doctor? Can my doctor fire me?
How can I challenge decisions made by my insurance company?
Part 6 Medication 59
Questions 39-44 discuss medications, side effects, and treatment plans:
Why don't I notice any positive changes when I take my medications?
Why does my doctor keep changing my medications and treatment plan? Is my doctor experimenting on me?
How can I find help to pay for my medical expenses and medications?
Part 7 Taking an Active Role in Your Own Care 69
Questions 45-59 offer advice on how to become an active participant in managing your disease:
How can I regain control of my health?
What is the role of positive thinking in chronic illness?
Is exercise helpful in managing chronic illness?
How can I find trustworthy information about my condition?
Part 8 Stress 93
Questions 60-64 explain the connection between stress and illness and provide helpful approaches to managing stress:
What is the role of stress in chronic illness?
How can I manage stress that cannot be avoided?
How can meditation be used to reduce stress and manage chronic illness?
Part 9 Clinical Trials 101
Questions 65-67 describe clinical trials and how to find one appropriate for you:
What are clinical trials?
What are the risks and benefits of clinical trials?
How can I find clinical trials?
Part 10 Special Considerations for Common Chronic Illnesses 105
Questions 68-91 discuss some of the most common chronic illnesses and offer management strategies:
What is autoimmunity?
How do I know if alcohol or other substances have become a chronic illness for me?
What is COPD?
What can I do to about high blood pressure?
Part 11 Looking Ahead 131
Questions 92-100 provide answers to help you move forward and to live your best life with chronic illness:
Where can I find a support network?
How can I find purpose and meaning in life again?
How can I stop myself from worrying about the future?
What is the difference between cure and healing?
Resources 145
Appendix 161
Glossary 165
Index 167