100 Questions & Answers about Brain Tumors

by Virginia Stark-Vance, Mary Louise Dubay

Overview

Whether you’re a newly diagnosed brain tumor patient, a survivor, or a friend or relative of either, this book offers help. The only text to provide both the doctor’s and patient’s point of view, 100 Questions & Answers About Brain Tumors gives you authoritative, practical answers to your questions about treatment options, post-treatment quality of life, sources of support, and much more. The authors, a brain tumor survivor teamed with a neuro-oncologist specializing in brain tumors, provide a comprehensive, step-by-step discussion of what you can expect in the diagnosis and treatment of brain tumors, while providing a real-life understanding of what these steps might mean for your day-to-day life. This book is an invaluable resource for anyone coping with the physical and emotional turmoil of this frightening disease.

Product Details

ISBN-13:	9780763723088
Publisher:	Jones & Bartlett Learning
Publication date:	07/15/2003
Series:	100 Questions & Answers about
Edition description:	1E
Pages:	239
Product dimensions:	0.56(w) x 9.00(h) x 6.00(d)

About the Author

Virginia Stark-Vance, MD, Dr. Stark-Vance is a medical oncologist in solo practice in Dallas and Fort Worth. Dr. Stark-Vance received her training in medical oncology at the National Cancer Institute in Bethesda, Maryland. Following her fellowship, she served as a clinical investigator at the Cancer Treatment Evaluation Program of NCI and as protocol chairman for clinical trials for primary central nervous system lymphoma and ocular lymphoma. Since her return to her home state of Texas in 1996, she has continued to develop clinical trials for malignant glioma as well as lecture widely on treatment options for primary and metastatic brain tumors. Her work has been published in Journal of Clinical Oncology and Neuro-Oncology, and she is the editor of an web site for brain tumor patients in the Dallas-Fort Worth area, www.dfw-neuronetwork.com.

Mary Louise (ML) Dubay graduated with honors from the University of Tennessee in 1987 and lives in Plano, Texas, with her husband Duane and their dog Smokey. ML was diagnosed with an anaplastic oligodendroglioma in July of 2000. After successful surgery to remove the tumor, she underwent seven weeks of radiation therapy, and after responding favorably to two years of chemotherapy she has been able to discontinue most treatments. To this date, she remains cancer free. With the support of her co-author and medical team, ML was able to return to her career in January 2001 as Vice President of Marketing for Nortel Networks in Richardson, TX. She is a vocal advocate of brain tumor survivor support organizations and is a founding member of the survivorship program at the Baylor Richardson Cancer Center in Richardson, TX. One of her goals, through this book, is to be able to help others realize the importance of a positive attitude and how it can provide strength, courage, and hope to those that are fighting the battle of brain cancer.

Table of Contents

Preface xi

Foreword xiii

Introduction xvii

Part 1 The Basics 1

Questions 1-6 introduce the reader to the basics of brain tumors, including:

What is a brain tumor?

Why are there so many different types of brain tumors?

Can any part of the brain have a tumor? Where in the brain do most brain tumors occur? Are there areas of the brain where it is more dangerous to have a tumor?

Part 2 Diagnosis and Pathology 23

Questions 7-16 describe common symptoms associated with brain tumors and the diagnosis process:

What are the symptoms of brain tumors? Do all brain tumors cause headaches?

Why does every doctor I see ask me so many questions about my symptoms, my previous illnesses, and my family history?

What is a neurological examination?

Part 3 Neuroimaging 45

Questions 17-24 explain the different types and components of neuroimaging:

I had a CT scan that was abnormal, but then the doctor also ordered an MRI scan. Why do I need both?

How does an MRI work?

I have had surgery and radiation therapy for a brain tumor. How often should I have a follow-up MRI scan?

Part 4 Neurosurgery 73

Questions 25-34 explain the different types of neurosurgery available and how surgery is performed and its effects on patients:

Is surgery necessary to diagnose a brain tumor?

What are the potential complications of a neurosurgical procedure?

Should I get a second opinion before having an operation?

Part 5 Radiation Therapy 93

Questions 35-44 review radiation as a treatment option and how it affects a patient:

What is radiation therapy? Is radiation therapy given for every type of brain tumor?

What are the side effects of radiation therapy?

How does the radiation oncologist decide how much of the brain to radiate if nothing is visible on the MRI?

Part 6 Chemotherapy and Other Drug Therapy 121

Questions 45-57 discuss how chemotherapy and other drugs attack the brain tumor, as well as their potential effects:

What is the blood-brain barrier? How does it determine which drugs are used in brain tumor treatment?

What are the most common chemotherapy drugs used to treat brain tumors? What are their side effects?

What can I do to prevent or diminish the side effects of chemotherapy?

Part 7 Clinical Trials for Brain Tumor Patients 155

Questions 58-63 explain what a clinical trial is and how to determine if you are a candidate for the treatments offered, such as:

What is a clinical trial?

What do I need to know before I enroll in a study?

What is the difference between an investigational therapy, an "off-label" drug, a complementary therapy, and an alternative therapy?

Part 8 Complications of Brain Tumors and Their Treatment 175

Questions 64-70 review possible complications that may occur during or as a result of the treatments for brain tumors:

Can I expect to have brain damage as a result of surgery, radiation therapy, or other treatment?

I experience short periods in which I can't speak. This happens several times a day. I never black out, but my neurologist says that I could be having seizures. Is this common?

How long do I need to take anticonvulsant medication?

Part 9 Medications Used in Brain Tumor Treatment 191

Questions 71-75 introduce the different types of medications prescribed to treat brain tumors and their side effects:

What does dexamethasone do? What are the side effects of dexamethasone?

What are the side effects of anticonvulsant medication?

My pharmacist said that there may be a "drug interaction" between some of my medications. What does this mean?

Part 10 Living with a Brain Tumor 203

Questions 76-88 offer information on how to maintain a happy, productive life while living with a brain tumor, as well as first-hand advice from a brain tumor survivor:

I have just learned that I have a brain tumor and I'm afraid. Is this common?

What dietary adjustments do I need to make during treatment? Should I take vitamin or mineral supplements? Can diet protect against recurrence of a brain tumor?

Fatigue is a big problem for me. I simply don't have the energy to do anything. What can I do about this?

Part 11 Taking Control of Your Future 231

Questions 89-100 provide information on how to best take control of your prognosis and treatment, as well as your quality of life:

Are there specific support groups for brain tumor patients? How do I find one?

What records do I need to keep about my treatment? What is the best way to stay organized?

My oncologist told me that even though I'm doing well, my tumor will probably come back at some point. He said, "Hope for the best, but prepare for the worst." I' m hoping for the best, but how do I prepare for the worst?

Appendix 263

The appendix is a list of Websites, organizations, and literature to help brain tumor patients and their families find additional resources on general and specific topics related to brain tumors.

Glossary 267

Index 275